ࡱ> 5@ Qbjbj22 ZXX&CQY^^^^$ <,<,<,P,l, 0-2/(///7pO;c<xzzzGї$R j8G7^78G8G^R<//2vIvIvI8G://xvI8GxvI<vIJJ/- CN׫<,rGj\,LL<tGxt  ^^t,<@4vI9BC;<<<  "+dTI"  +THE PAEDIATRIC SOCIETY OF NEW ZEALAND Secretariat: Email: Denise Tringham P O Box 22 234 Wellington Tel: (04) 938 4827 Fax: (04) 976 4827  HYPERLINK "mailto:psnz@paradise.net.nz" psnz@paradise.net.nz   Advocacy Policy Part 1  TOC \o "1-2" \h \z \u   HYPERLINK \l "_Toc83117988" Part 1:  PAGEREF _Toc83117988 \h 2  HYPERLINK \l "_Toc83117989" THEORETICAL BASIS OF ADVOCACY FOR CHILDREN AND YOUNG PEOPLE  PAGEREF _Toc83117989 \h 2  HYPERLINK \l "_Toc83117990" Introduction  PAGEREF _Toc83117990 \h 2  HYPERLINK \l "_Toc83117991" Why advocate for children and young people?  PAGEREF _Toc83117991 \h 2  HYPERLINK \l "_Toc83117992" Why child and youth health professionals?  PAGEREF _Toc83117992 \h 3  HYPERLINK \l "_Toc83117993" What is advocacy?  PAGEREF _Toc83117993 \h 3  HYPERLINK \l "_Toc83117994" A theoretical model of advocacy  PAGEREF _Toc83117994 \h 4  HYPERLINK \l "_Toc83117995" Deciding whether Psnz Advocates on an issue  PAGEREF _Toc83117995 \h 5  HYPERLINK \l "_Toc83117996" Risks  PAGEREF _Toc83117996 \h 5  HYPERLINK \l "_Toc83117997" PART 2: PROTOCOLS  PAGEREF _Toc83117997 \h 5  HYPERLINK \l "_Toc83117998" How advocacy will be done within the PSNZ  PAGEREF _Toc83117998 \h 5  HYPERLINK \l "_Toc83117999" Methods and techniques  PAGEREF _Toc83117999 \h 7  HYPERLINK \l "_Toc83118000" Position statements  PAGEREF _Toc83118000 \h 8  HYPERLINK \l "_Toc83118001" References  PAGEREF _Toc83118001 \h 9  Part 1: THEORETICAL BASIS OF ADVOCACY FOR CHILDREN AND YOUNG PEOPLE Introduction Advocacy has a long and distinguished history in paediatrics. In the US, Jacobi and Caille, the founders of the American Pediatric Society were pivotal in combating structural barriers to the control of diphtheria. In the UK, Professor Court promoted the concept of an integrated Child Health Service and organisations such as the Child Health Monitoring Unit use modern epidemiological techniques to highlight important issues in child health. In Australia Professor Vimpani, with federal government support, has formed the National Initiative for the Early Years (NIFTY), to highlight the literature linking environmental deprivation to brain development in infancy. The Brainwave Trust, led by Dr Robyn Fancourt is a similar organisation in New Zealand. In New Zealand, child and youth health professionals have been involved in advocacy since the earliest days of the specialty. Other current advocacy efforts in New Zealand include the Childrens Agenda push for children to be on the policy-making agenda and legislatively-mandated death review. These policies did become an election issue and were incorporated into the pre-election policy statements of the two parties that have formed the new government. Also successful has been the push for early intervention that led to the establishment of the Family Start programmes. These examples of advocacy by child and youth health professionals were successful because those involved applied the principles we will describe in this paper. Advocacy is our business, we are good at it and it is our belief that we, as child/youth health professionals, should be doing more of it. Why advocate for children and young people? There are at least six reasons to advocate for children and young people  NOTEREF _Ref474575317 \h  \* MERGEFORMAT 12: Children and young people are a substantial part of our population. In 1996, there were 979 128 children (out of a total 3.6 million) under 18 years in New Zealand. They had 946 488 parents. Children and their parents together make up 53% of the population, and while the proportion of children in the population is falling, their absolute number is not. Children and young people are a vulnerable group in society. Their health and well being reflect the will and ability of society to care for its citizens. The dominant political force of the last two decades has focused on economic management, to the severe detriment of families with young children. Children and young people have no political power. They are not represented by the pressure groups with influence in health and related policies and are unable to influence resource allocation decisions made by government or business. The foundations of adult health are laid in childhood. Patterns of nutrition and growth, but also knowledge, attitudes and behaviour are established in childhood. The United Nations Convention on the Rights of the Child requires states to provide special protection for children and young people. Now is a good time. The Clinton, Blair and Clarke governments were put there by populations who wish to see a change in the way society is run. A new paradigm is emerging from the rigid economic rationalist view of the last two decades. In this new paradigm we are seeing increasingly a devolution of power, an obligation for recipients to give as well as receive and a view of people as integrated and growing, rather than as complete adults. For such a model to operate effectively a key element is informed advocacy on the behalf of the population for whom programs are run. Why child and youth health professionals? Because it is good for children and young people. The issues and the solutions we choose to address have and will make a difference to the health of children and young people. Because leaders lead by example. We are the leaders of our respective child and youth health services and so as the leaders should be setting an example. Because we are in a good position to identify issues requiring action at a local level. We have very well developed community networks, and so are in a good position to identify local issues requiring action. Because we are in a good position to identify issues requiring action at a national level. We are a large and comprehensive multidisciplinary national organisation, we communicate regularly and so are in a unique position to understand issues. Because it is our history. Truby King was the first nationally recognised advocate for childrens rights in New Zealand. Various child health leaders since have identified and acted for childrens issues including car safety, pool fencing and child abuse. Because it is in our interests. Advocacy raises our profile as the leaders in child/youth health. This enhances our credibility. There are plenty of others less well qualified who will be prepared to fill the gap if we dont. Will the quality of their advice be to our good, or to the good of children/young people? Because it is our philosophy. Child and youth health professionals have an ecological view of childrens health. This requires us to take every opportunity to advocate about the wider issues which impact on children/young peoples health and development. What is advocacy? Advocacy is speaking for children and young people, putting their case and advancing their cause. It can be divided into: Advocacy on behalf of an individual. Advocacy for the individual child/young person is a routine part of clinical practice. Often we are advocating without realising it. Ensuring a single parent has the benefits she/he is entitled to is advocacy. A referral to CYFS for neglect or abuse is advocacy. Advocacy on behalf of our local population of children and young people. This might include for example advocating with local authorities for improved safety standards for playgrounds or children walking to school. Advocacy on behalf of children and young people nationally. This policy deals with the last of these forms of advocacy. A theoretical model of advocacy We have alluded above to a new social order, with devolved control, mutual responsibility and a view of people as integrated and growing, rather than as complete adults. This new way of organising health and social services requires informed advocacy from the recipient population to operate effectively. Systems of organised advocacy at local, regional and national levels will be necessary to provide an organised voice on behalf of the individual citizens or population groups. Separation of advocacy from service provision can avoid conflicts of interest. In this health system, the three elements of service provision, funding and advocacy each has a distinct and complimentary role and interacts with the other elements. Deciding whether PSNZ Advocates on an issue The PSNZ will use the following criteria to decide whether to advocate on an issue: Do we know enough about this problem, or is more information necessary before we can make a decision? Is the problem large (high prevalence)? Is the problem serious (life threatening)? What would happen if we did nothing? How much difference can we realistically make? Is the time right for change? Will they listen? What is the balance of resources and power between likely allies and foes? Is the PSNZ the best organisation for the job? Is some other organisation or individual likely to understand this issue better or have more influence? Is there risk to the PSNZ from adopting this issue? What are the competing priorities? Do we have the resources to adopt this issue? Risks It is important that the PSNZs advocacy efforts are not seen as party-political, aggressive, or distracting from our core business of child and youth health. However our credibility and public relations will be enhanced if we are seen to set children and young peoples health in a holistic context and to take New Zealands obligations under the United Nations Convention on the Rights of the Child seriously. Great care must be taken to check who will be the major beneficiary of any advocacy. Frequently changes initiated to improve a specific aspect of child and youth health will have spin offs that are beneficial for a service or a class or group of providers. For example it is a truism in health care that many people advocate for the employment of more people like themselves for the good of children and young people. A national multidisciplinary organisation must maintain the ability to look at the bigger picture, which allows the wisdom for appropriate prioritization. Capture by any group with thinly disguised self interest must be avoided. PART 2: PROTOCOLS How advocacy will be done within the PSNZ When undertaking advocacy, the Paediatric Society of New Zealand will : Decide whether to adopt a cause at all, using the criteria above. Ensure that if individual families, children, or young people are involved: the family(ies) and the child(ren)/young people fully understand and support what is proposed the family(ies) and the child(ren)/young people are clear about possible consequences such as loss of privacy or disclosure of medical or personal history the advocacy will be empowering for the child(ren)/young people and family(ies), for example by supporting them to speak for themselves wherever possible. Collect reliable information on which to base the argument. For example: The epidemiology. What is the prevalence/incidence, how many cases last year? The law. What are the obligations of this local authority, official government / party policy? Who (which individual in the relevant Ministry for example) is responsible for this area? What is the penalty for non-compliance? What is the complaints procedure? Legal action / threat of legal action is a powerful and persuasive argument. Identify allies and work collaboratively with them. Identify relevant stakeholders, make contact, and agree on mutual goals and methods. Form strategic alliances with influential NGOs on specific issues e.g., campaign for repeal of Section 59 of the Crimes Act. Form alliances with Parent Support Groups. Joint statements eg with RACP, RNZCGP, NZMA, College of Midwives, NZNO, NZAAHD. Identify and seek the support of decision makers and people with relevant influence Identify obstacles to change (people, systems, vested interests) and consider how to address these in planning. The PSNZ will endeavour not to make enemies when advocating for children and young people by listening carefully to other viewpoints and reviewing its position seeking the best route to achieve the goal in mind. Identify clearly what the goal is and be realistic about what can be achieved. Discuss what are acceptable compromises and what are not, what our preferred option is and what the acceptable alternatives are. We will not promise more than we can deliver to the families and children/young people. Identify the strategies most likely to be effective in reaching our goal (see below) While advocacy by its nature is political, the PSNZ will avoid being party-political. We will be clear that we will give our support to whoever supports us and keep all the factions informed. Address issues rather than individuals, unless it is the individual that is the problem. Decide what resources we can commit to this, for example what time or money we can commit. Decide a timeline and important milestones. Be prepared to change tactics as circumstances change. 14. Work proactively whenever possible. Eg Have a yearly advocacy calendar, with press releases prepared well in advance and well-prepared identified spokespeople for each issue Have agreed PSNZ positions prepared in advance Have identified spokespeople with responsibility for particular issues. These will usually be the PSNZ President and committee chairs. Spokespeople will be approved by Council A list of issues and spokespersons names and contact details will be made available to the media Ideally, PSNZ spokespeople have received media training. 15. Ensure excellent internal communication. E.g. When responding to ad hoc media inquiries at short notice every effort will be made to gather a consensus view that reflects the collective views of the members. This will be sought via the PSNZ listserver and direct approach to the relevant PSNZ committee members. 16. Wherever possible, the PSNZ will encourage the participation of children and young people in its advocacy work. This is consistent with the UN Convention on the Rights of the Child and the Healthy Youth Development Model. Methods and techniques The PSNZ will use the advocacy strategy most appropriate for the particular issue. Some options include: Regular meetings with politicians and government officials to discuss childrens and young peoples issues Making submissions to relevant select committees examining issues relevant to children and young people Writing and publishing guidelines for the care of children and young people, maintaining high clinical standards, modeling good practice and piloting innovative practice. Issuing a position statement on a particular issue Examining the impact of policies of governments and other institutions Evaluating the effectiveness of programs and publishing the findings Researching the issue, eg public poll on whether people would be prepared to pay an extra 1c/$1 tax for children. Keeping up to date with the literature on the issue. Disseminating research findings and information about childrens rights and other issues through publications, media, presentations, seminars and local forums. Using media to publicise an issue and to inform and influence public opinion. The PSNZ will form relationships with health reporters. PSNZ spokespeople will be media trained wherever possible. Working with other national agencies committed to advocating for children and young people Workforce development for child and youth health professionals in advocacy skills, e.g., media training Facilitating self-advocacy by children, young people and their families in local or national groups. E.g., helping form a support group Award prizes/ awards; The Paediatric Society of New Zealand Award for Services to Children/young people Publicly congratulate people for efforts in advocacy for children/young people eg press statement Position statements The PSNZ will use the following format when issuing position statements: The PSNZ believes (the following principles regarding) (screening for developmental delay) Statement of ethical issues; e.g., parents have the right to know, children have the right to best developmental and educational outcome, UNCROC principles relevant to the issue. The PSNZ notes (the following circumstances regarding) (sensorineural deafness). Statement of facts follows; e.g., prevalence, impact, opportunity for health gain, precedents overseas. The PSNZ recommends that the following steps should be taken (to reduce the incidence of SIDS) Actions the government should undertake which directly follow from the facts and principles above. E.g., education campaign affirming key SIDS messages, additional resources for smoking cessation among young Maori women The PSNZ resolves to take the following actions/ recommends to its members (regarding child abuse). Statement of what the PSNZ will do. E.g., promote nonviolent parenting at every opportunity, update policies on child protection and family violence. References Health of our children: Wealth of our nation. Page  PAGE 9 of  NUMPAGES 9 Advocacy Policy September 2004 Review: September 2006 Russell Wills Kleinman LC. To end an epidemic: lessons learnt from the history of diphtheria. N England J Med 1992; 326: 773-7. Court S Dm. Report of the Committee on Child Health Services. 1976. Cmnd 6684, London, HMSO. Roberts I. Deaths of children in house fires: fanning the flames of child health advocacy? BMJ 1995; 311: 1381-2. Kohler L (1995). New Child Public Health. In Spencer N (Ed). Progress in Community Child Health, Volume One. Ch 1, p3. Statistics New Zealand. 1996 Census: population structure and internal migration. Wellington, 1998. Table 7. Statistics New Zealand. 1996 Census: Families and households. Wellington, 1998. Table 11. Ministry of Health (1998). Our Childrens Health: Key Findings on the Health of New Zealand Children. Wellington, MoH. National Health Committee. The Social and Economic Determinants of Health. Wellington, NHC 1998. Barker DJP (Ed) (1993). Fetal and Infant Origins of Adult Disease. London, BMJ Publishing Group. United Nations (1989). United Nations Convention on the Rights of the Child: Resolution 44/25. Geneva, United Nations. Hassall I. The place of children and childrens advocates in the new politics. Childrens Agenda Newsletter, October 1997. P4. Woods E. Personal communication 1999. Royal College of Paediatrics and Child Health Advocacy Committee. How to do Advocacy. 1999. London, RCPCH. 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" # $ % & ' ( ) * Oh+'0 $ @ L X dpxDRAFTfRAFRussell Willsoussuss Normal.dotlVeronica Casey2roMicrosoft Word 10.0@F#@ҪM@֯ի@֯ի !9՜.+,D՜.+,L hp  Wellington School of Medicinny"CA DRAFT Titled P8PX _PID_HLINKS_AdHocReviewCycleID_EmailSubject _AuthorEmail_AuthorEmailDisplayName_PreviousAdHocReviewCycleID_ReviewingToolsShownOnceAZ1S _Toc831180011M _Toc831180007G _Toc831179997A _Toc831179987; _Toc8311799775 _Toc831179967/ _Toc831179957) _Toc831179947# _Toc831179937 _Toc831179927 _Toc831179917 _Toc831179906  _Toc831179896 _Toc831179883Dmailto:psnz@paradise.net.nzKDraft Advocacy Policycevcasey@xtra.co.nzicVeronica CaseynKero  !"#$%&'()*+,-./0123456789:;<=>?@ABCDEFGHJKLMNOPRSTUVWXYZ[\]^_`abcdefghijklmnopqrstuvwxyz{|}~Root Entry F]׫Data I1TableQ,WordDocumentZSummaryInformation(DocumentSummaryInformation8CompObjj  FMicrosoft Word Document MSWordDocWord.Document.89qRoot Entry F37Data I1TableQ,WordDocumentZ  !8d _PID_HLINKS_AdHocReviewCycleID_EmailSubject _AuthorEmail_AuthorEmailDisplayName_PreviousAdHocReviewCycleID_ReviewingToolsShownOnceAZ1S _Toc831180011M _Toc831180007G _Toc831179997A _Toc831179987; _Toc8311799775 _Toc831179967/ _Toc831179957) _Toc831179947# _Toc831179937 _Toc831179927 _Toc831179917 _Toc831179906  _Toc831179896 _Toc831179883Dmailto:psnz@paradise.net.nzoKcosts for ASM preparationvcasey@xtra.co.nzVeronica CaseySummaryInformation(DocumentSummaryInformation8CompObjj  FMicrosoft Word Document MSWordDocWord.Document.89q՜.+,D՜.+,L hp  Wellington School of Medicinny"CA DRAFT TitleH  Paediatric Society of New Zealand: Position Statements
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Position Statements

From time to time the Society will produce a Position Statement - a statement that presents the Society's opinion about a particular child health issue in the form of a detailed report which explains and/or recommends a particular course of action.  

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